Posted by Brent on June 28, 2000 at 15:08:38:
Hi,
I was wondering if anyone here has juvenile MD and is between the ages of 17-30?
Also, I got to meet Andy Parr this weekend. Ge is a disabled ski team member who has Stargardts.
I have some interesting stories to tell about the US Disabled Ski Team but I need to know who is out there.
Yhanks
Posted by Brycer79 on July 27, 2000 at 18:36:05:
In Reply to: Juvenile MD( Stargardts) posted by Brent on June 28, 2000 at 15:08:38:
I have it,
umm yeha thats all I have to write.. :o)
Brycer79
Posted by Dan Roberts on June 30, 2000 at 09:24:35:
In Reply to: Juvenile MD( Stargardts) posted by Brent on June 28, 2000 at 15:08:38:
Dear Brent,
You can meet and communicate with other Stargardt's people through the MD Support email discussion group, MDList.
To learn about it, go to:
http://www.mdsupport.org/mdlist.htmlThere are more than 340 very nice folks there, and we would love to meet you.
Best regards,
Dan Roberts, Director
MD Support

By serenity on Sunday, March 20, 2005 - 07:28 pm:

Hi there,
It has been about 6 years since I was first diagnosed with Stargardt's and now I am about to go out into the workforce and I need to know about funding. Is there anyone who has had any experience with this sort of thing in the past?
thx
serenity

By Cindy on Sunday, November 13, 2005 - 05:58 pm:

Serenity,

My daughter also has Stargardt's, she is at college taking Performing Arts. I see her struggling everyday and hope that one day they would find a cure. I think the agency that you need as you are now going into the workforce is called Access to Work, they can carry out a workstation assessment and advise your employers about what you need.

Please let me know how you get on.

Cindy