Posted by Sharon I. Wells on June 26, 2000 at 19:24:09:
Does other MD people find themselves in the pitfalls of an emotional rollercoaster ride with the lapses and reoccurrance of the MD symptoms? Do you go for a length of time and nothing happens and you feel like maybe things are going to stall for a while and then you awaken with painful bright lights in your vision even with your eyes closed? IT seems to me that in all of various health problems I've witnessed personally and in others, the eyesight diseases are the most taxing emotionally! Thank goodness for others you know what you are going through. The yoke is not so burdensome when there are more than one bearing it.
Posted by Judy Prevost on June 27, 2000 at 10:49:31:
In Reply to: The Emotional Rollercoaster of MD posted by Sharon I. Wells on June 26, 2000 at 19:24:09:
Dear Sharon,
I urge you to subscribe to the MDList on MD Support. This is an e-mail discussion group of over 340 people who discuss daily all aspects of living and coping with MD. Depression, roller coaster rides, etc. are all talked about openly and honestly. You could derive much information and support by communicating with these wonderful individuals.
This is the direct link from our site where you will find more information and subscription instructions.
http://members.aol.com/danlrob/MDpeople/mdlist.html
If you are interested and experience problems subscribing, please e-mail me privately and I will give you a helping hand.
Hope to see you there.
All the best,
Judy Prevost, Co-Owner MDList
MD Support
Posted by Sally G. on June 27, 2000 at 09:08:57:
In Reply to: The Emotional Rollercoaster of MD posted by Sharon I. Wells on June 26, 2000 at 19:24:09:
Does other MD people find themselves in the pitfalls of an emotional rollercoaster ride with the lapses and reoccurrance of the MD symptoms? Do you go for a length of time and nothing happens and you feel like maybe things are going to stall for a while and then you awaken with painful bright lights in your vision even with your eyes closed? IT seems to me that in all of various health problems I've witnessed personally and in others, the eyesight diseases are the most taxing emotionally! Thank goodness for others you know what you are going through. The yoke is not so burdensome when there are more than one bearing it.
Yes, being diagnosed with macular degeneration can be emotionallly draining and very frustrating. Many people also suffer from depression after hearing the news. But that is not unusual. Two issues of the AMDF Quarterly Newsletter had articles on "Depression and Macular Degeneration." Written by Arnold Wyse, M.D., they were the Summer 1999 and the Fall 1999 issues. You can read more about them or how to order them by clicking on the "NEWSLETTER" button on the Bulletin Board front page or from the AMDF web site's Home page. They make interesting reading. You are not alone feeling depressed and as though you are on an emotional roller-coaster. But we will find ways to treat macular degeneration some day. Ways to prevent it and a cure are also under investigation. We must all stay as positive as possible. Good luck to you. Sally G.