drusen?
By admin (Admin) on Tuesday, October 10, 2000 - 08:33 am:
Posted by brian on September 09, 2000 at 10:50:30:
I am a 33 year old male. Six years ago, at 27, I developed several large scars in my left eye. I was diagnosed with punctate inner choroidopathy. There were no scars in my right eye. However, since the begining doctors have noted fine rpe changes/pigmentation adjacent to my fovea. They are ten to 20 microns in size. I originally had just a few, but sometime over the last six years apparently developed more. I'm now told that I have 10 to 20 of these little pigmentary changes on the back of my retina. The consensus seems that this is completely unrelated to my pic disease. One doctor I went to described them as very fine drusen. He said that nearly everyone gets little yellow spots under their retina as it matures, and it really isn't a concern. Other doctors said that I was awefully young to be getting such spots. So I don't know what to think. Are rpe changes/pigmentary changes/drusen (of the size and number I've described) normal for a thirty-three year old?

By Anonymous on Thursday, August 09, 2001 - 01:03 am:

Five years ago, at the age of 23, I was diagnosed with Punctate Inner Choroidopathy (PIC) in my left eye. As a result of PIC, I now have a blind spot in my left eye. However, I feel very fortunate as this does not affect my daily activities nor has it gone into my right eye. Does anyone else have any experience in dealing with Punctate Inner Choroidopathy (new research, treatments, causes, etc.) Please let me know. Thanks in advance.

By Anonymous on Friday, December 13, 2002 - 04:43 pm:

Can anyone help us? Recently my 8 year old son had been complaining of blurred vision. We took him to an optometrist, thinking he might need glasses. The optometrist did a visual field exam, and then referred us to a neurologist. The primary physician instead felt an opthalmologist would be better to visit instead. We went to the opthalmologist today. He asked if Macular degeneration ran in the family. It does with my son's great grandfather. He noticed in only his left eye what he called a "precursor" for macular degeneration along with "drusen"? Can anyone explain this to us? ALL HELP IS EXTREMELY APPRECIATED!!!! GOD BLESS

By Jessica on Wednesday, May 14, 2003 - 03:50 am:

I have dry AMD with drusen. I first noticed a small blurry blind spot in my right eye in 1999, after looking thru a spectroscope, teaching 7th grade science. The following November, I again looked thru a spectroscope with my left eye and then had a small blurry blind spot in my left eye on the following day or so.
I was diagnosed with macular pucker.
The only other time I looked thru a spectroscope my right eye blur advanced to a popcorny-looking blur there.
As a result of this, I am destroying and throwing away my spectroscopes, as I think that it is very likely that spreading out light on my retina somehow may have concentrated uv or infrared light on the macula and damaged it.
The opthamologist doesn't seem to have any way to repair this. I am also concerned about optics students who may unknowingly be damaging their eyes using spectroscopes.
I am writing this because as a science teacher, I am concerned about the impact of bright lights as a possible cause of retinal damage.

By Kelly Foster on Monday, May 19, 2003 - 03:12 am:

My name is Kelly, and I also have been diagnosed with the rare PICS disease. I am currently trying to set-up a worldwide support group for this. Please contact me at: visualfutureaustralia@yahoo.com.au

By Kelly Foster on Monday, May 19, 2003 - 03:12 am:

My name is Kelly, and I also have been diagnosed with the rare PICS disease. I am currently trying to set-up a worldwide support group for this. Please contact me at: visualfutureaustralia@yahoo.com.au

By Gail Dale on Wednesday, August 06, 2003 - 03:30 pm:

My retina specialist said the supplement, zeaxanthin, may be of considerable benefit to people having macular degeneration. Since more drusen have formed in one eye since my last visit to the specialist, I am interested in finding out more about this supplement to hopefully slow the progression.

Has anyone who has this condition found zeaxanthin to be of benefit? And, if so, what strength and what brand? Thank you for any help that you can provide.

By Anonymous on Friday, February 20, 2004 - 03:41 pm:

I have recently been diagnosed with PIC. I noticed on a couple of people referred to having above normal stress and exzema. Anyone else have PIC with these other issues?

By Anonymous on Friday, May 20, 2005 - 12:19 pm:

I have also just been diagnosed with PIC - I've found this website, which contains some information about PIC www.pic-world.com

By derek Thurnell on Wednesday, March 08, 2006 - 03:38 pm:

I'm a 41 year old male, just been diagnosed as "possible" PIC, after 8 years of a myopic MD diagnosis. My right eye developed CNV in 1998(aged 33 years), and sub-macular surgery left me with massive scarring, with virtually no central vision. Then at Xmas 2005 (aged 41) my left eye develpoed distorted vision; I've had 2 PDTs in the past 2 months,but vision continues to gradually deteriorate and my RS is trying me on 30mg Prednisone to see if that improves things.
Has anyone else got PIC, and CNV secondary to high myopia? Any info on possible treatments? I hope to use AVASTIN intravitreously soon if the prednisone/PDT combination doesn't work, but there are significant risks of retinal complications apparently, for high myopes, e.g. detached retina,cataracts, glaucoma, etc.
Anyone got any advice? Cheers.

By gebbeth on Monday, August 21, 2006 - 03:32 pm:

I am only 33 years old, and I am an artist. I am freaking out. I had an opthamologist oppointment this weekend, he told me I had bumps in my eye that could be an early sign of macular problems later on. What were they? The nurse said they were 'fine drusen'. He said he couldn't tell if they were soft of hard but because of my age they are probably hard, and that he usually doesn't see this in people under 60.

Do I need a second opinion who can tell me if they are soft or hard? I know hard are not as at risk, but does it matter when you have 'fine" drusen?

What does that mean? Does this mean I will probably develop AMD? No-one else in my family (parents, grandparents) have AMD. I, however, have the worst eyesight in my entire family.

I'm freaking out very badly. He said it might mean something in 15-20 years, still under the average age.

Can somone please tell me what 'fine drusen' means for my macular health?'

What can I do to prevent myself from getting the disease, or is it too late?