By admin (Admin) on Tuesday, October 10, 2000 - 08:48 am:
Posted by ESÝN BANKOÐLU on September 05, 2000 at 08:28:14:
ý learned that my sister have stargardts desease 6 months ago.ý live in Turkiye.ý don't have much information abaut the desease.ý want to learn that the final of this desease will be BLINDNESS or not at any time.my family is so worried abaut this condition ,we need some help...
Posted by Stephen on September 05, 2000 at 09:01:05:
In Reply to: desire for info abaut stargardts posted by ESÝN BANKOÐLU on September 05, 2000 at 08:28:14:
ý learned that my sister have stargardts desease 6 months ago.ý live in Turkiye.ý don't have much information abaut the desease.ý want to learn that the final of this desease will be BLINDNESS or not at any time.my family is so worried abaut this condition ,we need some help... Stargardt's is also known as Juvenile Macular Degeneration. You can read more about Stargardt's from people who posted previous messages on this Bulletin Board by reading the Archives section of this web site. One of the 12 or so topics listed is "Macular Degeneration and the Young." You might want to read thoes messages. Also, Marla Runyan is a thirty-one year old woman who has had Stargardt's since the age of nine. Nevertheless, she will be representing the US at the Sydney Olympic Games later this month. So, do not give up hope. A diagnosis od Stargardt's dose not necessarily mean your sister will go blind. Have her see a good eye care professional. People are doing research into macular degeneration. We must all keep hope alive that treatments and a cure are on their way. My best wishes to your sister. Stephen
Posted by ESÝN BANKOÐLU on September 05, 2000 at 11:01:04:
In Reply to: Re: Info About Stargardts a/k/a Juvenile Macular Degeneration posted by Stephen on September 05, 2000 at 09:01:05:
ý learned that my sister have stargardts desease 6 months ago.ý live in Turkiye.ý don't have much information abaut the desease.ý want to learn that the final of this desease will be BLINDNESS or not at any time.my family is so worried abaut this condition ,we need some help... Stargardt's is also known as Juvenile Macular Degeneration. You can read more about Stargardt's from people who posted previous messages on this Bulletin Board by reading the Archives section of this web site. One of the 12 or so topics listed is "Macular Degeneration and the Young." You might want to read thoes messages. Also, Marla Runyan is a thirty-one year old woman who has had Stargardt's since the age of nine. Nevertheless, she will be representing the US at the Sydney Olympic Games later this month. So, do not give up hope. A diagnosis od Stargardt's dose not necessarily mean your sister will go blind. Have her see a good eye care professional. People are doing research into macular degeneration. We must all keep hope alive

By lori gill on Wednesday, October 12, 2005 - 06:55 pm:

Can anyone help me with this, I have had Stargardts macular degeneration since the age of 17 and am now 50 years old. I am looking for more info on this and have been unable to obtain any. The only information on this is always applying to the aged. Appricated any advise.

By alena on Wednesday, March 15, 2006 - 12:31 am:

I am 15 and had it since third grade i have done some research on google and i found out i will not go fully blind and this yellow white fleck surrounds the middle retina and i sm hoping to find more about it.